All week long I’ve been wanting to write an in depth, quality post. And all week long I’ve started by writing one sentence and then erasing it and moving on to other things. It’s been quite the week.
Between our latest news about Cohen’s Torticollis and Plagiocephaly treatment and his unhappy temperament due to teething, I haven’t been the most positive or uplifting person to be around. And when I’m in those dark places, it’s not good for me to write blog posts. I want this blog to be a place of honesty, but also a place of HOPE. I’m not going to write about the nitty gritty until I’ve taken it up with the Lord and gained HIS perspective on the situation.
So first an update on Cohen. Awhile back I posted this vlog telling you a bit about Cohen’s Torticollis. As a result of the tightened muscle in his neck, he also developed a flat spot on the back right side of his head, a condition called Plagiocephaly. Both our pediatrician and physiotherapist never seemed too concerned about this, and recommended we wait to see how things would work themselves out. However last week we went and met with a specialist and he said that Cohen would be a good candidate for helmet therapy (read more about it here). He also let us know that Cohen’s head is 78% symmetrical and because of the flat spot, his face has shifted slightly, with one ear pushing forward and his forehead protruding over his right eye. The doctor did say he was only a moderate case (rather than mild or severe) but with 3 months of helmet therapy, we should see a drastic improvement.
Initially my thought was “No way! I don’t want my baby looking like some kind of freak in a helmet!”
That’s honestly what I thought. Rather than concern for his best interest in the long term, I was thinking about the funny looks I’d get at the grocery store and the mall, walking around with a baby in a helmet. But after really searching my heart, I realized that if my biggest concern was how people might look at us, that wasn’t reason enough to say no.
So this Wednesday we’ll go for his first helmet fitting. He’ll be wearing the helmet 23 hours a day for three months. Most of these hours he’ll be sleeping (the boy still sleeps nearly 15 hours a day!) or playing at home. And we can take it off to go out, but it’s like wearing your retainer…the more consistent you are, the quicker you see results! My biggest concern is that it will affect his sleep or his mood in general. He is such a happy boy and a great sleeper, I would hate to see him be uncomfortable or unhappy because of the helmet.
It’s hard for me to accept that we have to do this. Its been challenging enough to manage the chiropractor, physiotherapist and general doctor’s appointments and now I have to add another one into the mix.
But then I think how blessed we are that Cohen is healthy and strong. This condition hasn’t affected his development or his temperament. It could be so much worse.
So if you think of us, please pray. Pray that I’ll have the strength to be consistent with this treatment. Pray that Cohen won’t be negatively affected and will adjust quickly to his helmet. Pray that I’ll get over worrying what other people think and instead focus on what’s best for Cohen in the long run.
And pray and believe with us for full and total healing of both Cohen’s neck and head.
Thanks so much!